To assess whether provision of a personalized patient-held eye health summary (glaucoma personal record) improves patients’ knowledge of glaucoma at 1-year follow-up. The National Institute for Clinical Excellence has recommended such an approach to ascertain if this may ultimately help slow disease progression.
Recruited patients, newly diagnosed with glaucoma conditions, were randomly allocated to receive standard clinical care or an additional glaucoma personal record, detailing the current state of each individual’s eye condition. Mann-Whitney
A total of 122 patients were recruited; 57 controls and 44 intervention patients were tested for their glaucoma knowledge, equating to 83% retention rate. Out of a maximum available 100% converted score, the median scores were 58% and 53% for the control and intervention arm, respectively (p = 0.85). Regression analysis showed that age (p = 0.015) had a negative association and level of education (p = 0.002) had a positive association with glaucoma knowledge.
The glaucoma personal record does not impact on a patient’s knowledge of glaucoma in either a positive or negative way. Other approaches to improve health literacy among glaucoma patients, particularly for patients who are elderly or have a limited educational background, must be considered to improve patients’ awareness and knowledge of their own condition.
International Standard Randomized Controlled Trial Number Registry: ISRCTN41306818.
Eur J Ophthalmol 2017; 27(5): 542 - 547
Article Type: ORIGINAL RESEARCH ARTICLE
AuthorsMarina Forbes, Helen Fairlamb, Leon Jonker
- • Accepted on 12/01/2017
- • Available online on 01/02/2017
- • Published in print on 30/08/2017
This article is available as full text PDF.
- Forbes, Marina [PubMed] [Google Scholar] 1, * Corresponding Author (firstname.lastname@example.org)
- Fairlamb, Helen [PubMed] [Google Scholar] 2
- Jonker, Leon [PubMed] [Google Scholar] 3
Ophthalmology Department, Cumberland Infirmary, North Cumbria University Hospitals NHS Trust, Carlisle - UK
R&D Department, Cumberland Infirmary, North Cumbria University Hospitals NHS Trust, Carlisle - UK
Department of Medical and Sport Sciences, University of Cumbria, Carlisle - UK